Kelly said, “When Ruby was around ten weeks old, she developed jaundice. The doctors thought she had a blockage in her bile duct, so they sent her to hospital. After lots of tests they ruled this out, and Ruby started to return to normal, although her enzyme levels were still really high. Eventually, the hospital decided to test for NPC – an inherited neurodegenerative disease – by doing a skin biopsy. It was awful to watch Ruby go through that.
“We were told that Ivy needed surgery, and all our family came to the hospital to see her. All I could think was ‘this is what happens to other people, this doesn’t happen to us’. Ivy had surgery the next morning, which was the longest day ever. She came out of surgery at tea time, and they told us that they’d only been able to remove 80% of the tumour, and that they’d had to resuscitate her. She went into intensive care, and she was so pale, but she had her eyes open. That was the last time we saw her with her eyes open.”
“We found out at our 12 week scan that Owen had fluid on his neck, and something wasn’t right.”
”Bringing Ethan into the world wasn’t easy but the first moment we saw him, we were instantly in love. Our beautiful baby boy was all we had dreamt about for as long as we could remember. It was the happiest moment in our lives,” Anna said.
“Bluebell Wood helped us learn to be a mum and dad to Ivy. We were able to go outside and push her in her pushchair – the sun was on her face, and the wind blew her hair about. It was such a special moment and we did it together.”
It was during their 20-week pregnancy scan in April 2015 that Liz and Will Butterell got the news no parent would ever want to hear. After hospital staff spotted that the left side of their baby’s heart was not developing properly, a hospital consultant sat Liz and Will down to tell them their child had hyperplastic left heart syndrome.
Like any expectant mother, Amanda was thrilled to be carrying her new baby. She enjoyed a perfectly healthy pregnancy, until her waters broke at just 19 weeks.
When baby Rosie was born in September 2015, her parents Joanne and Jonathan knew they would only have a short time to spend with her. They came to Bluebell Wood after one-day-old Rosie had passed away, providing the family precious moments together that they will treasure forever. During Joanne’s pregnancy, the couple were given the… Read more »
Beautiful Ebony-Rose spent her last days at Bluebell Wood after suffering complications from the day she was born. Ebony-Rose’s mum, Lena, tells her story.
This is the story of amazing Mr Joe, who sadly passed away at home on 30th May 2015. Joe was born with an undiagnosed neurological syndrome and for several years came to Bluebell Wood for respite, where he could relax and enjoy sensory play.
This is the story of a beautiful little girl Rowan, who sadly passed away in November 2012, as told by her mum Sarah and dad Matt; “Rowan was born on 26th May 2011, she was a beautiful baby and was such a happy little girl always smiling and chattering away. “When she was just ten months-old… Read more »
At just three-years-old, Leionna was diagnosed with Battens Disease – a rare, genetic neurodegenerative condition. The little lady enjoyed her respite time at Bluebell Wood, where she loved to be pampered. Leionna was born in March 2006 and was a welcome sister for brother Logan. Their siblings Oscar and Albie came along in the next… Read more »
This is the story of Alexander who was one of the strongest and bravest little boys you could ever meet. His Mum Maxine tells his story. “Alexander (or Lex as we always call him) was born on 11th February 2005 and for the first four years of his life he was a happy, healthy child… Read more »
As told by her parents Andrew and Carla: In June 1992 our daughter Chloe was born and we were sadly told her first breath would be her last, however, our very special little girl defied all the odds and lived a very happy and content life for seventeen and a half years. Chloe was born… Read more »
Coming to Bluebell Wood for the first time was quite a scary experience for us. We were worried about what people might think because ours was an unusual situation. We were visiting with our grand-daughter Lexie who was 10 months old at the time and had just been diagnosed with an extremely rare life-limiting metabolic… Read more »
Emma was a chatty, bubbly girl who loved dancing, Sheffield Wednesday, and going to school. She was diagnosed with a rare brain tumour in 2004, and over the next four years she lost her sight and her ability to walk. Despite all this, she never lost her smile. Sadly, in 2008 she passed away at… Read more »
Faye Nickels spent her last days at Bluebell Wood. Her mum Carol tells her story. Faye was diagnosed with kidney disease when she was just 13-years-old. After two years on dialysis, her granddad donated a kidney to her and she went into hospital in December to have her transplant. A week after her transplant she… Read more »
Beautiful Owyn sadly passed away in 2013, after which he stayed in our Forget Me Not ‘end of life suite.’ Since then, his parents Melissa and Kyan, have raised more than £14,000 for us in his memory. Owyn suffered from Meconium Aspiration Syndrome immediately after he was born, a condition brought about when meconium (a… Read more »
With big blue eyes and a cheeky smile, Eleanor was the much loved first child for proud parents Paul and Dee. Born at 39 weeks after a healthy pregnancy, she was discharged from Chesterfield hospital at a couple of days old. Eleanor’s mum Dee explains: “She was just amazing; a really alert and lovely little… Read more »
Bluebell Wood Children’s Hospice cares for and supports children and young adults with life-shortening and life-threatening conditions. We support the whole family and offer a range of services including; short breaks, respite, end of life, community support, young adults group, and sibling support. All of our services are completely free to our families.
Losing a child is the hardest thing anyone will ever have to face, but at Bluebell Wood you won’t have to do it alone. We’re here to make sure that the end of your child’s life is as comfortable as possible, however you chose to spend your last moments together. Whether you’re coming from hospital,… Read more »