When Daniel was born in November 2016, he didn’t arrive the way his family was expecting. Mum and dad, Jodie and Warren, tell the story of their little ‘Braveheart’.
After being referred to a consultant, we were told when she was just four years old that she had a very rare syndrome called San Filipo A.
Junior was born in August 2012 at just 24 weeks old. He has hydrocephalus and can’t speak, walk or hear. His mammas, Colleen and Alison, share his story.
Zuzanna, who is aged three, visits us at Bluebell Wood for short breaks and day care.
Before Leona was born, her parents knew there was a high likelihood she could inherit the same extremely rare genetic condition as two of her three siblings. She visits Bluebell Wood Children’s Hospice for respite.
Antony, who is five years old, has nonketotic hyperglycinemia (NKH), which is a rare genetic disorder. This means he can’t walk or talk, and has seizures.
Kaden Bramley, aged 14, has SMA Type II, which is a rare genetic neuromuscular condition. This means his muscles are seriously weakened, which affects his mobility.
Adam was born at 32 weeks, and was starved of oxygen at birth. He spent 13 weeks in intensive care, and during the first two years of his life went through lots of surgery and hospital admissions.
Meet Madison, a gorgeous, happy two-year-old. Her parents, Wendy and Gary, share their story. “Before Madison was born, we were told that she had Duodenal Atresia and would need surgery; and that she would possibly have Downs Syndrome. Duodenal Atresia means a part of Madison’s small bowel had not developed properly, and she couldn’t pass through… Read more »
This is the story of amazing Mr Joe, who sadly passed away at home on 30th May 2015. Joe was born with an undiagnosed neurological syndrome and for several years came to Bluebell Wood for respite, where he could relax and enjoy sensory play.
Bluebell Wood has been a big part of mum Gemma’s life for the last few years; both of her incredible daughters were referred here for support. Her eldest daughter Brooke was five when she first came to Bluebell Wood. At birth she was diagnosed with a number of conditions including cerebral palsy, a liver condition and brain damage…. Read more »
Draw date 17/11/2017 1st prize: £1,000 Ticket 96351 Rollover prize: This week’s lottery rollover prize winner was selected as ticket number 97397. The prize was not won and will rollover to £2,100 next week. 3rd prize: £50 Ticket 83394. 4th prizes: 5 further prizes of £10. 43385 98873 26352 23281 53771 Thank you for playing, your support has… Read more »
When we were first approached about coming to Bluebell Wood with Brendan I was horrified. Why on earth would we want to go to a place like that? Did they think we weren’t coping well with his condition? All sorts of negatives and no positives were going through my mind. When we were finally persuaded… Read more »
Eight year old George is a bubbly, happy child who loves to play and have fun. He is always full on and needs 100% attention, because of his disability he needs you to be his arms and legs so it’s extremely tiring looking after him. George was diagnosed with Septo Optic Dysplasia when he was… Read more »
Alexia was born prematurely on 31 August 2010 four weeks earlier than expected. Proud Mum Lizzie had been monitored during her pregnancy and given extra scans as doctors had been concerned that the baby was very small. Alexia weighed only 3lb 7oz at birth and spent the first 11 months of her life in hospital… Read more »
Six-year-old Lilly is a happy, smiling girl who loves books, Disney characters and musicals; however, she was born with an unknown condition which throughout her early years has caused her many health problems. Lilly was very poorly when she was born in 2006 and it wasn’t until she was two-years-old that she was finally diagnosed… Read more »
Lara has been visiting Bluebell Wood Children’s Hospice since she was born and often stays for respite. Her infectious smile can light up a room. When Lara was born in 2008, she was taken to the special baby care unit because of her erratic breathing pattern. During the next month or so, Lara was diagnosed… Read more »
Before Leona was born, her parents knew there was a high likelihood she could inherit the same extremely rare genetic condition as two of her three siblings. She visits Bluebell Wood Children’s Hospice for respite. The rare chromosome related condition has a spectrum of complexity and Leona’s affected in several ways including pancreatitis, bowel failure,… Read more »
Theo was born at 29 weeks, and was diagnosed very early on with cerebral palsy, epilepsy and feeding problems among other complex medical needs. Since then he has also been registered blind. “There are many words to describe Theo. Beautiful, special, cheeky but probably the most fitting word is a ‘fighter’,” explains Denise, Theo’s mum…. Read more »
Kian was one of the first children to visit Bluebell Wood Children’s Hospice. He has lissencephaly, epilepsy and cerebral palsy. This means he can’t talk or walk and needs to be PEG fed. Kian’s parents explain how Bluebell Wood has helped their family. “Kian is a happy sociable child, and always has a smile on his face…. Read more »
At Bluebell Wood we look after children and young adults with life-shortening conditions, and a range of complex medical needs. We look after children and young adults up to the age of 25, and our experienced nursing and medical team can support families in South Yorkshire, North Nottinghamshire, North Derbyshire and parts of North Lincolnshire…. Read more »
Bluebell Wood Children’s Hospice cares for and supports children and young adults with life-shortening and life-threatening conditions. We support the whole family and offer a range of services including; short breaks, respite, end of life, community support, young adults group, and sibling support. All of our services are completely free to our families.
At Bluebell Wood, we often refer to our respite services as ‘short breaks.’ These are stays with us which can vary from a night, a week, or longer, depending on what works best for you and your family. While you’re here you’ll be treated to our delicious home-cooked meals, meaning you can spend more time… Read more »
Our physiotherapy sessions include different treatments to help people manage symptoms like pain, muscle weakness, stiffness and difficulty moving. Lesley has experience working with babies, children and young adults with complex medical needs and can work with you and your child to support them. As part of your care, we can give you advice on positioning,… Read more »