Local Charities Day, which takes place on Friday December 16th will put small, local charities like Bluebell Wood Children’s Hospice in the spotlight, and highlight the important work they do in their local community.
Bluebell Wood provides care and support to children and young adults with life-shortening and life-threatening conditions across South Yorkshire, North Derbyshire, North Nottinghamshire and parts of North Lincolnshire. This includes end of life care, short breaks, music therapy, counselling, sibling support, home visits and more.
On 16th December, Bluebell Wood is asking local people to share why the hospice is so important, using the hashtag #LocalCharitiesDay and tagging @BluebellWoodCH. Bluebell Wood will also be sharing a family story for each area they support, as well as pictures of what they’re getting up to at the hospice.
One of the families who loves to visit Bluebell Wood is Antony Kunicka-Holda and his mum and dad, Maria and Przemyslaw, from Barnsley. Antony, who is aged five, has nonketotic hyperglycinemia (NKH), a rare genetic disorder. This means he can’t walk or talk, and has seizures.
Maria said: “As soon as Antony was born I knew something was wrong. He was very floppy and tired, and he didn’t wake up a lot.”
One day when Antony was three months old, he didn’t wake up at all. He was rushed to hospital, where his family were told he was having seizures, and that he had NKH.
Maria heard about Bluebell Wood in 2013, after Antony caught pneumonia. She said: “When we first visited we were really fearful. But our opinion soon changed – it’s such a nice place, it feels like home. Everyone was friendly and positive, and Antony has so much fun when he’s there.
“I don’t have to explain myself at Bluebell Wood – the staff know exactly what I am going through. If I have any concerns I can ring straight away and someone will come – you don’t have to rush to A&E. Bluebell Wood support us in lots of ways, both physically and emotionally. It really is a brilliant place.”