Molly has SMA Type One, which means she uses a wheelchair and finds it difficult to lift her arms. When she visits Bluebell Wood she loves to colour, have her nails painted, and play with her friend, Chloe, who has the same condition.
“We were told that Ivy needed surgery, and all our family came to the hospital to see her. All I could think was ‘this is what happens to other people, this doesn’t happen to us’. Ivy had surgery the next morning, which was the longest day ever. She came out of surgery at tea time, and they told us that they’d only been able to remove 80% of the tumour, and that they’d had to resuscitate her. She went into intensive care, and she was so pale, but she had her eyes open. That was the last time we saw her with her eyes open.”
When Jacob came home, I found out that I was 16 weeks pregnant with my third baby, Mia. That’s when we started going to Bluebell Wood. I needed to go for regular scans and ante-natal appointments, and having Bluebell Wood’s help meant that I could drop Jacob off there first, knowing he was in safe hands, and was being really well looked after.
“Everyone here goes the extra mile and absolutely nothing is too much trouble. The counselling, the fun times like pantos and all the events; there really is no end to their support. Bluebell Wood is always trying to do something for families, and help us have a normal, happy life.”
Pauline Higbid has turned up in all weathers to help out at the King Street shop, every Tuesday for the last ten years, come rain or shine, and also raised over £20,000 for Bluebell Wood.
Once a month at weekends, we stayed at Bluebell Wood with Sienna and Cordelia, so the girls could bond. The lights and noise of the hospital were too much for Cordelia, so it was wonderful to be able to spend time peacefully at Bluebell Wood. The girls have a really strong bond; I think this is definitely down to the time they spent together at Bluebell Wood.
Supporting Bluebell Wood is a no brainer. The care that we received when Natalie was ill was amazing and the end of life care was a real blessing.
The best part is knowing that every £1 that our runners raise on behalf of Bluebell Wood goes directly to helping such a worthy cause. I’ve also visited the hospice on a number of occasions and it’s great to see the amazing care provided to children at the hospice.
I started my journey being 18 & ½ stone in weight so I knew I needed to lose some weight so I decided to combine this with raising a few quid for the hospice.
“The best way that I found to stay motivated is to get involved with a charity that motivates you, whether it be personal or something you wish to do for others.”
After his wife heard about our volunteering opportunities at our Birthday Bash three years ago, Gary Mason decided to dedicate his time as part of our eBay team.
“Volunteering at the hospice was a memorable experience for all of us, and will stay with us for a long time” – Kirsten Oliver, Interserve
“When you hear about the great work Bluebell Wood does, it feels fantastic to know you have contributed.”
“We found out at our 12 week scan that Owen had fluid on his neck, and something wasn’t right.”
Amelia is 5 years old and was born at just 30 weeks into mum, Jenni’s, pregnancy. In 2016 she started visiting Bluebell Wood for short breaks.
”Bringing Ethan into the world wasn’t easy but the first moment we saw him, we were instantly in love. Our beautiful baby boy was all we had dreamt about for as long as we could remember. It was the happiest moment in our lives,” Anna said.
“Bluebell Wood helped us learn to be a mum and dad to Ivy. We were able to go outside and push her in her pushchair – the sun was on her face, and the wind blew her hair about. It was such a special moment and we did it together.”
It was during their 20-week pregnancy scan in April 2015 that Liz and Will Butterell got the news no parent would ever want to hear. After hospital staff spotted that the left side of their baby’s heart was not developing properly, a hospital consultant sat Liz and Will down to tell them their child had hyperplastic left heart syndrome.
When Daniel was born in November 2016, he didn’t arrive the way his family was expecting. Mum and dad, Jodie and Warren, tell the story of their little ‘Braveheart’.
After being referred to a consultant, we were told when she was just four years old that she had a very rare syndrome called San Filipo A.
Like any expectant mother, Amanda was thrilled to be carrying her new baby. She enjoyed a perfectly healthy pregnancy, until her waters broke at just 19 weeks.
Junior was born in August 2012 at just 24 weeks old. He has hydrocephalus and can’t speak, walk or hear. His mammas, Colleen and Alison, share his story.
Zuzanna, who is aged three, visits us at Bluebell Wood for short breaks and day care.
Before Leona was born, her parents knew there was a high likelihood she could inherit the same extremely rare genetic condition as two of her three siblings. She visits Bluebell Wood Children’s Hospice for respite.
Antony, who is five years old, has nonketotic hyperglycinemia (NKH), which is a rare genetic disorder. This means he can’t walk or talk, and has seizures.
Kaden Bramley, aged 14, has SMA Type II, which is a rare genetic neuromuscular condition. This means his muscles are seriously weakened, which affects his mobility.
Adam was born at 32 weeks, and was starved of oxygen at birth. He spent 13 weeks in intensive care, and during the first two years of his life went through lots of surgery and hospital admissions.
Meet Madison, a gorgeous, happy two-year-old. Her parents, Wendy and Gary, share their story. “Before Madison was born, we were told that she had Duodenal Atresia and would need surgery; and that she would possibly have Downs Syndrome. Duodenal Atresia means a part of Madison’s small bowel had not developed properly, and she couldn’t pass through… Read more »
When baby Rosie was born in September 2015, her parents Joanne and Jonathan knew they would only have a short time to spend with her. They came to Bluebell Wood after one-day-old Rosie had passed away, providing the family precious moments together that they will treasure forever. During Joanne’s pregnancy, the couple were given the… Read more »
Beautiful Ebony-Rose spent her last days at Bluebell Wood after suffering complications from the day she was born. Ebony-Rose’s mum, Lena, tells her story.
This is the story of amazing Mr Joe, who sadly passed away at home on 30th May 2015. Joe was born with an undiagnosed neurological syndrome and for several years came to Bluebell Wood for respite, where he could relax and enjoy sensory play.
Bluebell Wood has been a big part of mum Gemma’s life for the last few years; both of her incredible daughters were referred here for support. Her eldest daughter Brooke was five when she first came to Bluebell Wood. At birth she was diagnosed with a number of conditions including cerebral palsy, a liver condition and brain damage…. Read more »
My name is Naomi and I am writing about my little sister Toni. Toni is not so little any more as she is 22 but to me she will always be my little sister. I was 7 years old when Toni was born and I was excited to be getting a little sister to run around… Read more »
When we were first approached about coming to Bluebell Wood with Brendan I was horrified. Why on earth would we want to go to a place like that? Did they think we weren’t coping well with his condition? All sorts of negatives and no positives were going through my mind. When we were finally persuaded… Read more »
Eight year old George is a bubbly, happy child who loves to play and have fun. He is always full on and needs 100% attention, because of his disability he needs you to be his arms and legs so it’s extremely tiring looking after him. George was diagnosed with Septo Optic Dysplasia when he was… Read more »
This is the story of Zainab, told by her Mum, Salma; “Zainab was diagnosed with Congenital Merosin Deficient Muscular Dystrophy at just 6 months old. This is a life limiting condition causing muscle weakness which meant that Zainab was unable to do things independently and completely depended on me for all her care needs. Zainab… Read more »
Alexia was born prematurely on 31 August 2010 four weeks earlier than expected. Proud Mum Lizzie had been monitored during her pregnancy and given extra scans as doctors had been concerned that the baby was very small. Alexia weighed only 3lb 7oz at birth and spent the first 11 months of her life in hospital… Read more »
This is the story of Callum a very cuddly and smiley little boy who sadly passed away at Bluebell Wood Children’s Hospice on 4 July 2012. Mum Heather tells the story; “Callum was born in 2005 with undiagnosed hypertonia, and as a result of this was oxygen dependent and suffered with lots of chest infections… Read more »
Aaron was diagnosed at birth with an unbalanced chromosome translocation. This means he has a lot of health issues, both physical and mental, and needs 24 hour care. Aaron’s parents describe how Bluebell Wood helps their family. “Aaron has a daily routine with lots of medication. He is fed through a tube and often is up… Read more »
Lily’s Mum shares her story and explains what Bluebell Wood means to her family. Lily was born in January 2009 and spent a week in Intensive Care as she had a hole in her chest. This required treatment and Lily fought this problem with only a little help from oxygen, it was apparent then that… Read more »
In October 2009 our world of normality was shattered when Natalie was diagnosed with a rare form of Liver Cancer at Sheffield Children’s Hospital. A programme of Chemotherapy was embarked on followed by a major operation in Leeds to remove the tumour and take away the damaged part of her liver. By the summer of… Read more »
Six-year-old Lilly is a happy, smiling girl who loves books, Disney characters and musicals; however, she was born with an unknown condition which throughout her early years has caused her many health problems. Lilly was very poorly when she was born in 2006 and it wasn’t until she was two-years-old that she was finally diagnosed… Read more »
Polly, aged 1, had a rare mitochondrial condition and spent the last few months of her life at Bluebell Wood Children’s Hospice. Here, her mum Cheryl, tells her story. When you are expecting a baby you always have slight doubts that your child might have problems, but once you see it crying and it has… Read more »
Estella was diagnosed with Spinal Muscular Atrophy (SMA) Type One in April of 2011. Although fairly uncommon the disease is the number one genetic cause of death among babies. The muscular development becomes limited and Estella has had breathing difficulties and has lost all but basic movement in her hands. Details about SMA can be… Read more »
This is the story of a beautiful little girl Rowan, who sadly passed away in November 2012, as told by her mum Sarah and dad Matt; “Rowan was born on 26th May 2011, she was a beautiful baby and was such a happy little girl always smiling and chattering away. “When she was just ten months-old… Read more »
At just three-years-old, Leionna was diagnosed with Battens Disease – a rare, genetic neurodegenerative condition. The little lady enjoyed her respite time at Bluebell Wood, where she loved to be pampered. Leionna was born in March 2006 and was a welcome sister for brother Logan. Their siblings Oscar and Albie came along in the next… Read more »
Lauren was born on her due date of the 23rd of October 2010. As she was our first child we didn’t really know what to expect. You can read all the books you like, but nothing prepares you fully for the challenges of parenthood. She was beautiful and perfect, and we were so happy to… Read more »
Lara has been visiting Bluebell Wood Children’s Hospice since she was born and often stays for respite. Her infectious smile can light up a room. When Lara was born in 2008, she was taken to the special baby care unit because of her erratic breathing pattern. During the next month or so, Lara was diagnosed… Read more »
This is the story of Alexander who was one of the strongest and bravest little boys you could ever meet. His Mum Maxine tells his story. “Alexander (or Lex as we always call him) was born on 11th February 2005 and for the first four years of his life he was a happy, healthy child… Read more »
Harrison didn’t have the start to life his parents Samantha and Adam had hoped for. At just three-weeks-old, he contracted meningitis and was rushed into hospital. Soon after, he came to Bluebell Wood for End of Life care…but made a miraculous recovery. The tot’s life hung in the balance and after a very worrying few… Read more »
As told by her parents Andrew and Carla: In June 1992 our daughter Chloe was born and we were sadly told her first breath would be her last, however, our very special little girl defied all the odds and lived a very happy and content life for seventeen and a half years. Chloe was born… Read more »
Coming to Bluebell Wood for the first time was quite a scary experience for us. We were worried about what people might think because ours was an unusual situation. We were visiting with our grand-daughter Lexie who was 10 months old at the time and had just been diagnosed with an extremely rare life-limiting metabolic… Read more »
Emma was a determined young lady who loved dancing, clothes, Sheffield Wednesday and much more. She was diagnosed with a brain tumour in 2004 and received Hospice at Home support from Bluebell Wood before she passed away at the age of 13. Her parents, Jane and Steve, have since fundraised thousands for Bluebell Wood in Emma’s memory… Read more »
Elsa Mayor was born in June 2014 and diagnosed with Spinal Muscular Atrophy (SMA) Type One when she was just eight-months-old. She passed away at Bluebell Wood earlier this year. Genetic testing and long spells in hospital led to Elsa being diagnosed with SMA Type One, a neuromuscular condition which affects movement. Type One is… Read more »
Georgia Finlayson sadly passed away aged 13. She stayed at Bluebell Wood with her family, surrounded by love and laughter. Her dad Harry has raised thousands of pounds for us since; in Georgia’s memory. In December 2010, the lives of Georgia’s family changed forever when they were told she had been diagnosed with a terminal… Read more »
Before Leona was born, her parents knew there was a high likelihood she could inherit the same extremely rare genetic condition as two of her three siblings. She visits Bluebell Wood Children’s Hospice for respite. The rare chromosome related condition has a spectrum of complexity and Leona’s affected in several ways including pancreatitis, bowel failure,… Read more »