Kelly said, “When Ruby was around ten weeks old, she developed jaundice. The doctors thought she had a blockage in her bile duct, so they sent her to hospital. After lots of tests they ruled this out, and Ruby started to return to normal, although her enzyme levels were still really high. Eventually, the hospital decided to test for NPC – an inherited neurodegenerative disease – by doing a skin biopsy. It was awful to watch Ruby go through that.
“If I feel stressed I go for a walk in the Bluebell Wood garden and watch the brook. I take a deep breath and I know it’s going to be OK. We’ve faced a lot since Charlie’s diagnosis, but now I know that Bluebell Wood really is the best thing to come out of such a bad situation.”
Molly has SMA Type One, which means she uses a wheelchair and finds it difficult to lift her arms. When she visits Bluebell Wood she loves to colour, have her nails painted, and play with her friend, Chloe, who has the same condition.
“We were told that Ivy needed surgery, and all our family came to the hospital to see her. All I could think was ‘this is what happens to other people, this doesn’t happen to us’. Ivy had surgery the next morning, which was the longest day ever. She came out of surgery at tea time, and they told us that they’d only been able to remove 80% of the tumour, and that they’d had to resuscitate her. She went into intensive care, and she was so pale, but she had her eyes open. That was the last time we saw her with her eyes open.”
When Jacob came home, I found out that I was 16 weeks pregnant with my third baby, Mia. That’s when we started going to Bluebell Wood. I needed to go for regular scans and ante-natal appointments, and having Bluebell Wood’s help meant that I could drop Jacob off there first, knowing he was in safe hands, and was being really well looked after.
“Everyone here goes the extra mile and absolutely nothing is too much trouble. The counselling, the fun times like pantos and all the events; there really is no end to their support. Bluebell Wood is always trying to do something for families, and help us have a normal, happy life.”
Pauline Higbid has turned up in all weathers to help out at the King Street shop, every Tuesday for the last ten years, come rain or shine, and also raised over £20,000 for Bluebell Wood.
Once a month at weekends, we stayed at Bluebell Wood with Sienna and Cordelia, so the girls could bond. The lights and noise of the hospital were too much for Cordelia, so it was wonderful to be able to spend time peacefully at Bluebell Wood. The girls have a really strong bond; I think this is definitely down to the time they spent together at Bluebell Wood.
Supporting Bluebell Wood is a no brainer. The care that we received when Natalie was ill was amazing and the end of life care was a real blessing.
The best part is knowing that every £1 that our runners raise on behalf of Bluebell Wood goes directly to helping such a worthy cause. I’ve also visited the hospice on a number of occasions and it’s great to see the amazing care provided to children at the hospice.
I started my journey being 18 & ½ stone in weight so I knew I needed to lose some weight so I decided to combine this with raising a few quid for the hospice.
“The best way that I found to stay motivated is to get involved with a charity that motivates you, whether it be personal or something you wish to do for others.”
After his wife heard about our volunteering opportunities at our Birthday Bash three years ago, Gary Mason decided to dedicate his time as part of our eBay team.
“Volunteering at the hospice was a memorable experience for all of us, and will stay with us for a long time” – Kirsten Oliver, Interserve
“When you hear about the great work Bluebell Wood does, it feels fantastic to know you have contributed.”
“We found out at our 12 week scan that Owen had fluid on his neck, and something wasn’t right.”
Amelia is 5 years old and was born at just 30 weeks into mum, Jenni’s, pregnancy. In 2016 she started visiting Bluebell Wood for short breaks.
”Bringing Ethan into the world wasn’t easy but the first moment we saw him, we were instantly in love. Our beautiful baby boy was all we had dreamt about for as long as we could remember. It was the happiest moment in our lives,” Anna said.
“Bluebell Wood helped us learn to be a mum and dad to Ivy. We were able to go outside and push her in her pushchair – the sun was on her face, and the wind blew her hair about. It was such a special moment and we did it together.”
It was during their 20-week pregnancy scan in April 2015 that Liz and Will Butterell got the news no parent would ever want to hear. After hospital staff spotted that the left side of their baby’s heart was not developing properly, a hospital consultant sat Liz and Will down to tell them their child had hyperplastic left heart syndrome.
When Daniel was born in November 2016, he didn’t arrive the way his family was expecting. Mum and dad, Jodie and Warren, tell the story of their little ‘Braveheart’.
After being referred to a consultant, we were told when she was just four years old that she had a very rare syndrome called San Filipo A.
Like any expectant mother, Amanda was thrilled to be carrying her new baby. She enjoyed a perfectly healthy pregnancy, until her waters broke at just 19 weeks.
Junior was born in August 2012 at just 24 weeks old. He has hydrocephalus and can’t speak, walk or hear. His mammas, Colleen and Alison, share his story.
Zuzanna, who is aged three, visits us at Bluebell Wood for short breaks and day care.
Before Leona was born, her parents knew there was a high likelihood she could inherit the same extremely rare genetic condition as two of her three siblings. She visits Bluebell Wood Children’s Hospice for respite.
Antony, who is five years old, has nonketotic hyperglycinemia (NKH), which is a rare genetic disorder. This means he can’t walk or talk, and has seizures.
Kaden Bramley, aged 14, has SMA Type II, which is a rare genetic neuromuscular condition. This means his muscles are seriously weakened, which affects his mobility.
Adam was born at 32 weeks, and was starved of oxygen at birth. He spent 13 weeks in intensive care, and during the first two years of his life went through lots of surgery and hospital admissions.
Meet Madison, a gorgeous, happy two-year-old. Her parents, Wendy and Gary, share their story. “Before Madison was born, we were told that she had Duodenal Atresia and would need surgery; and that she would possibly have Downs Syndrome. Duodenal Atresia means a part of Madison’s small bowel had not developed properly, and she couldn’t pass through… Read more »
When baby Rosie was born in September 2015, her parents Joanne and Jonathan knew they would only have a short time to spend with her. They came to Bluebell Wood after one-day-old Rosie had passed away, providing the family precious moments together that they will treasure forever. During Joanne’s pregnancy, the couple were given the… Read more »
Beautiful Ebony-Rose spent her last days at Bluebell Wood after suffering complications from the day she was born. Ebony-Rose’s mum, Lena, tells her story.
This is the story of amazing Mr Joe, who sadly passed away at home on 30th May 2015. Joe was born with an undiagnosed neurological syndrome and for several years came to Bluebell Wood for respite, where he could relax and enjoy sensory play.
Bluebell Wood has been a big part of mum Gemma’s life for the last few years; both of her incredible daughters were referred here for support. Her eldest daughter Brooke was five when she first came to Bluebell Wood. At birth she was diagnosed with a number of conditions including cerebral palsy, a liver condition and brain damage…. Read more »
My name is Naomi and I am writing about my little sister Toni. Toni is not so little any more as she is 22 but to me she will always be my little sister. I was 7 years old when Toni was born and I was excited to be getting a little sister to run around… Read more »
In October 2009 our world of normality was shattered when Natalie was diagnosed with a rare form of Liver Cancer at Sheffield Children’s Hospital. A programme of Chemotherapy was embarked on followed by a major operation in Leeds to remove the tumour and take away the damaged part of her liver. By the summer of… Read more »
This is the story of a beautiful little girl Rowan, who sadly passed away in November 2012, as told by her mum Sarah and dad Matt; “Rowan was born on 26th May 2011, she was a beautiful baby and was such a happy little girl always smiling and chattering away. “When she was just ten months-old… Read more »
At just three-years-old, Leionna was diagnosed with Battens Disease – a rare, genetic neurodegenerative condition. The little lady enjoyed her respite time at Bluebell Wood, where she loved to be pampered. Leionna was born in March 2006 and was a welcome sister for brother Logan. Their siblings Oscar and Albie came along in the next… Read more »
Lara has been visiting Bluebell Wood Children’s Hospice since she was born and often stays for respite. Her infectious smile can light up a room. When Lara was born in 2008, she was taken to the special baby care unit because of her erratic breathing pattern. During the next month or so, Lara was diagnosed… Read more »
This is the story of Alexander who was one of the strongest and bravest little boys you could ever meet. His Mum Maxine tells his story. “Alexander (or Lex as we always call him) was born on 11th February 2005 and for the first four years of his life he was a happy, healthy child… Read more »
Harrison didn’t have the start to life his parents Samantha and Adam had hoped for. At just three-weeks-old, he contracted meningitis and was rushed into hospital. Soon after, he came to Bluebell Wood for End of Life care…but made a miraculous recovery. The tot’s life hung in the balance and after a very worrying few… Read more »
As told by her parents Andrew and Carla: In June 1992 our daughter Chloe was born and we were sadly told her first breath would be her last, however, our very special little girl defied all the odds and lived a very happy and content life for seventeen and a half years. Chloe was born… Read more »
Coming to Bluebell Wood for the first time was quite a scary experience for us. We were worried about what people might think because ours was an unusual situation. We were visiting with our grand-daughter Lexie who was 10 months old at the time and had just been diagnosed with an extremely rare life-limiting metabolic… Read more »
Emma was a chatty, bubbly girl who loved dancing, Sheffield Wednesday, and going to school. She was diagnosed with a rare brain tumour in 2004, and over the next four years she lost her sight and her ability to walk. Despite all this, she never lost her smile. Sadly, in 2008 she passed away at… Read more »
Elsa Mayor was born in June 2014 and diagnosed with Spinal Muscular Atrophy (SMA) Type One when she was just eight-months-old. She passed away at Bluebell Wood earlier this year. Genetic testing and long spells in hospital led to Elsa being diagnosed with SMA Type One, a neuromuscular condition which affects movement. Type One is… Read more »
Georgia Finlayson sadly passed away aged 13. She stayed at Bluebell Wood with her family, surrounded by love and laughter. Her dad Harry has raised thousands of pounds for us since; in Georgia’s memory. In December 2010, the lives of Georgia’s family changed forever when they were told she had been diagnosed with a terminal… Read more »
Before Leona was born, her parents knew there was a high likelihood she could inherit the same extremely rare genetic condition as two of her three siblings. She visits Bluebell Wood Children’s Hospice for respite. The rare chromosome related condition has a spectrum of complexity and Leona’s affected in several ways including pancreatitis, bowel failure,… Read more »
Sheffield Mutual is one of many companies to sponsor our activities and services. Sheffield Mutual sponsors our minibus for £3,000 a year; covering the costs of maintenance and running the vehicle. This means that our children and young people can go on trips out in the community, so this sponsorship helps us to organise even more special experiences that lead to… Read more »
Architects WCEC have supported us in many ways since and have adopted us their charity of the year on several occasions. This has included staff members running the Dronfield 10km, providing architect services at our hospice in North Anston, holding ‘bag it up’ days, hosting annual charity events and staff volunteering. Bluebell Wood Account Manager,… Read more »
Keith Bright has organised an annual sponsored fishing match for us since 2011. So far he has netted a whopping £12,000 for Bluebell Wood Children’s Hospice. Since he started, over 650 people have taken part in the fishathon, with over 5,000 lbs of fish caught. Keith said: “I started fundraising for Bluebell Wood after hearing… Read more »
As a Child and Family Counsellor, Angie provides guidance and emotional support; a listening ear. This can be for children, their siblings, parents and even best friends. Bluebell Wood’s counselling support is completely person-centred, which means Angie and her team of volunteer counsellors do not give advice; instead they explore the thoughts and feelings of… Read more »
Kian was one of the first children to visit Bluebell Wood Children’s Hospice. He has lissencephaly, epilepsy and cerebral palsy. This means he can’t talk or walk and needs to be PEG fed. Kian’s parents explain how Bluebell Wood has helped their family. “Kian is a happy sociable child, and always has a smile on his face…. Read more »
Jack first came to Bluebell Wood in 2006. The youngster has an undiagnosed neurological disorder, and suffers frequent pneumonia and chest infections among other complex medical needs. “When Jack was born he was admitted straight onto the special care baby unit. He was there for almost ten weeks. During that time Jack repeatedly stopped breathing and had to… Read more »
Benjamin Futter first came to Bluebell Wood when his sister, Issabelle, was transferred from hospital and passed away here. The youngster is an active member of the hospice’s sibling group, which gives him the opportunity to meet and take part in a range of fun, special activities alongside other children whose siblings are being cared… Read more »
Faye Nickels spent her last days at Bluebell Wood. Her mum Carol tells her story. Faye was diagnosed with kidney disease when she was just 13-years-old. After two years on dialysis, her granddad donated a kidney to her and she went into hospital in December to have her transplant. A week after her transplant she… Read more »
Beautiful Owyn sadly passed away in 2013, after which he stayed in our Forget Me Not ‘end of life suite.’ Since then, his parents Melissa and Kyan, have raised more than £14,000 for us in his memory. Owyn suffered from Meconium Aspiration Syndrome immediately after he was born, a condition brought about when meconium (a… Read more »