Kian was one of the first children to visit Bluebell Wood Children’s Hospice. He has lissencephaly, epilepsy and cerebral palsy. This means he can’t talk or walk and needs to be PEG fed.
Kian’s parents explain how Bluebell Wood has helped their family.
“Kian is a happy sociable child, and always has a smile on his face. He’s our baby and has got a million and one fans, he absolutely loves football and is a huge fan of Doncaster Rovers.
Kian has very specific medical needs, which can sometimes be exhausting for our family. He often only has 2 hours sleep in a 24 hour period, which can leave us with no sleep, and completely shattered. Because of his condition, it’s difficult for our extended family to care for him, and that’s where Bluebell Wood comes in”.
“Mention the word hospice and see the look on people’s faces, even more so when you add the word children’s. Hospices have a stereotypical image of a place to die. Bluebell Wood is far from this. It’s a place of fun, laughter and smiles.
I am a parent of a child who is fortunate to be able to go to Bluebell Wood. I say fortunate, and some might be shocked by this, but they don’t know what Bluebell Wood is all about. It’s an ace place to be, where you can get total peace and tranquillity and a good night’s sleep! We always say we walk out of our house into a home when we go to Bluebell Wood.
Kian knows as soon as we turn into the drive at Bluebell Wood, his grin goes from window to window, he gets so excited to be back.”
“The house and staff are our extended family, and Bluebell Wood offers so much more than respite care for us and Kian. They don’t just focus on the child, it’s about the whole family.”
“We have also met other families through the hospice, which can help with support and information sharing. You can just look in another mum’s eyes and know exactly what they are going through.”