Theo's Story
Theo was born at 29 weeks, and was diagnosed very early on with quadriplegic cerebral palsy, epilepsy, feeding problems and severe reflux. Since then he has also been registered blind. Theo has bravely endured 21 surgical procedures in his short life, and also survived viral and bacterial meningitis. He is fed directly into his bowel hourly and continuously through the night via machine. Theo’s mum explains what Bluebell Wood means to her family.
“There are many words to describe Theo. Beautiful, special, cheeky but probably the most fitting word is a “fighter”. Theo never ceases to amaze me, he inspires me and is a really super son. Everyone who knows Theo will agree no matter how poorly he is, he never refuses to smile.
“No-one likes to come to terms with the fact that their precious child may not live into adulthood. It is obviously a parent’s worst nightmare. Theo was referred to Bluebell Wood in 2009 and I was apprehensive about what to expect. But all my doubts disappeared as Bluebell Wood not only care for all Theo’s needs but also care very much about the family as a whole. I immediately realised that they definitely live up to their logo of love and laughter
I truly believe all the staff are very special, and from our first visit I felt like we were part of an extended family. We look forward to our stays for so many reasons, the most obvious being a good night’s sleep. Luis, my 9 year old, thinks he is going on his holidays and really enjoys all the special attention he receives from the staff. Being able to talk to other parents with similar problems really helps. We are all there for the same reason and we all have something different to offer each other. This not only means sharing advice, a shoulder to cry on but also the creation of lovely memories. We share a bond with the staff that to me is unique.
Bluebell Wood has taught me many things, in fact too many to mention! I value every single minute we spend at the hospice. It has had a very positive impact on myself and my family, as we know the hospice will always be there for us right through until the end. My final message is straight from the heart... Thank you so much Bluebell Wood.
If you would like to help other families just like Theo's click here to make a donation.